The Affordable Care Act and Autism

Health reform includes many changes that may affect you differently depending on where you live and what type of coverage you have. To help you better understand your options, Autism Speaks has developed some resources that we hope are helpful as you learn about the law and consider your options. These resources include key components of the Affordable Care Act, provisions that impact the autism community, and a series of fact sheets that provide more detailed information on specific health reform topics.

via The Affordable Care Act and Autism | Advocacy/Insurance | Autism Speaks.

Utah’s Shameful ABA Lottery

Not cool, Salt Lake. Not cool at all.

Thirty-two states require insurers to provide coverage for autism treatment, causing premium costs to rise an average of 31 cents per member per month, according to data gathered by Autism Speaks, a national advocacy group. But a bill that would have provided this much-needed therapy died in the Utah House this year, dashing hopes for thousands of families who want their children to live productive lives. The “pilot program” the Legislature approved temporarily helps only a few hundred. Openings exist now for just 35 more children, whose futures will be determined by lottery. In a state with a rate of autism twice the national average, the lack of compassion shown by legislators is shameful.

via Short takes on the news | The Salt Lake Tribune.

Seminar on New York’s Insurance Law Changes

Autism Speaks will host a workshop on changes to New York’s insurance laws and how they will impact families on the spectrum. Details below, via Judith Ursitti, Director, State Government Affairs for Autism Speaks:

Autism Speaks is hosting a workshop September 13 in Suffern to help you better understand New York’s new autism insurance reform law that goes into effect in November.

Many of you no doubt have many questions about the law Governor Cuomo signed late last year and how it will affect you as a parent or a provider. Some of the issues we will address, include:

  • What is covered under the new law?
  • How will the law impact your health plan?
  • How will healthcare benefits interface with benefits under an IFSP, IEP or ISP?
  • What do you do if your plan is self-insured?
  • How will potential changes in the DSM impact coverage?

The workshop is scheduled next Thursday, September 13, from 6 to 8 pm in the auditorium of Rockland Community College at 145 College Road in Suffern.

To learn more, click here. To RSVP, call 914-934-5138 or email

Families Moving to States with Autism Insurance Mandates

Families are moving from Utah to other jurisdictions that require insurance companies to offer coverage for ABA and similar therapies…

In 2008 in a decision that felt bitingly unfair, the Eliasons moved to Colorado, leaving friends and family behind. But for April alone this year, their insurance company wrote a check for $3,534 for Isaac’s treatment that month. It included speech and occupational therapy along with Applied Behavioral Analysis ABA, increasingly recognized by states and other levels of government as effective therapy for autistic children.

via Without insurance for autism, Utah families leave state | The Salt Lake Tribune.